Tuesday, December 1, 2009

Happy Thanksgiving (A little Late)

I pray each of you had a wonderful Thanksgiving weekend. We wanted to take some time and tell you how thankful we are for you. You have blessed our lives in countless ways. Your prayers, notes and phone calls have meant so much to us. Thank you for loving our little boy and welcoming him into your hearts and lives.
Mason has had some ups and downs lately. We met with the GI doctor today and he is going to do a biopsy next Wednesday to test for Hirschprungs Disease. Over the past 3 months Mason has not been able to go #2 on his own. We have been trying several different things to see if they would work and we haven't had success with any of them. They did find blood in his stool when they did his last test. They have taken all dairy out of my diet to see if he has a milk allergy. If he does have Hirschprungs, then they would do surgery to repair some of the dead nerves. The doc said that it is 99% successful. In some ways it would be a blessing to solve that issue. As far as the vomiting goes, they are not sure if he is aspirating when he eats. First, we're going to tackle the going #2 issue then we'll deal with the vomiting issue. He has gained a 1/2 pound!! Yeah !!! At least he's moving on up.
How to pray: That we can solve the issues with going to the bathroom, continue to gain weight, keeping his food down. On a side prayer :) That he would sleep through the night. He's enjoying the 3o'clock hour lately.
This past weekend Mason was having a tough time at night. On Friday night I began to get frustrated and not sure what else to do to help him. My personality is a problem - solving type. If I can figure out a way to fix it, I will. Knowing this about myself my life verse is Proverbs 3:5&6. "Trust in the Lord with all your heart and lean NOT on your own understanding. In all your ways acknowledge HIM and HE Will direct your path. I know God gave me this verse b/c it's where I struggle the most. God reminded me in the early morning hours that He has everything under control. He loves Mason more than I ever could and I need to enjoy these moments. Time goes by so fast and I won't be able to rock him forever. I know I'll long for the day to go back to this time. So I'm learning to embrace the night take that time to pray over Mason, hold him tight, kiss him like crazy and continue to remind myself to Let it Go and Let God be God.
We love you all so much and thank you for taking this journey with our family. We will be posting pics of Mason's first Thanksgiving later this week. Have a blessed day!

Sunday, November 15, 2009

Wednesday, November 4, 2009

Our Little Pumpkin

We had so much fun at trunk or treat. Kevin and I were farmers with our little pumpkin. Of course I chose a costume for Mason that was 100 degrees in 90 degree weather in Florida. He wore it long enough to take pictures and that's all that matters:). I also want to share that Mason has gone 2days without throwing up!!!!!! Yeah!!!! I'm so excited. We met with a dietitian and she has cut several things out of my diet (sugar and Starbucks to start) and we've added a couple things to his diet. He is still taking the Zantac as well. I'm praying that we can take him off of that soon and the diet alone will work. I'm praising God at every feeding. Mason and I pray every time he eats that his food will stay in his tummy. Hopefully, our little pumpkin will start looking like one soon. :) Have a blessed week! Thank you for being a blessing. That smile melts my heart!!


Mason with his friends Reagan and Isaac (Tim Tebow)
Mason with Lisa and Kevin Sexton (This is the family that has helped us so much)

Tuesday, October 27, 2009

GI appointment

We had a good appointment today. The doctor has put Mason on Zantac to help with his reflux. We go back next week to discuss if it is working or not. I am also going to meet with a dietitian at All Children's next week to try and add more calories to my milk. We're hoping this will help Mason gain weight. If there are no improvements, then we will admit him at All Children's and begin running various tests on him. Please pray that this will work. I'm very nervous to put him on medication but want the vomiting to stop. I'm praying that he will not need to be on this for very long. Thank you for praying for Mason. He had another rough night last night. Hopefully, tonight will be a great one for him and his little body.

Monday, October 26, 2009

Neurologist/Shriners Visit

Sorry it has taken so long to get this update. Mason has had a rough weekend. Our neurologist appointment a couple of weeks ago went well. Mason is not having seizures!!! This is a huge blessing. She did mention a couple things that he may be developing but really it is to early to diagnose. I don't want to put those labels on him until it is more official. She said that he will have some significant delays because of the missing corpus collasum and hydrocephalus combination. Again, everything is a wait and see. On a good note, He is doing a great job holding his head steady. When we sit him on our lap, he is starting to hold his head for about 30 seconds. Praise the Lord!!!
Shriners was a great visit!!! We feel so blessed to have the Sexton family in our lives. Tyler has taken Mason under his wings and is so good to him. (We'll post pics of Mason with them soon). Mason was able to get his hard splints!!! He has to wear them anytime he is sleeping. We will meet with their Orthopedic surgeon in January to evaluate Mason' s hands. We'll decide then whether Mason will require surgery or not.
Right now if you could be praying that Mason will gain weight. He has only gained 9 oz. in 3 weeks. We are meeting with a GI specialist tomorrow to try and find out what is going on. He was throwing up all weekend. This gets very discouraging. We want to see what we need to be doing to help him. We're hoping that we can run some tests to see how his food is digesting and what is going on with his bowels.
This Saturday he has his first Trunk or Treat at church. We will be posting some cute pics next weekend. We've already practiced with his costume :). Thank you for keeping our little boy in your thoughts and prayers. We never feel alone in this journey. This past week has been very difficult for me. I guess it all hits me at different times. I begin to worry and think too far down the road. God reminded me this week of Joshua 1:9 "Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go." I just needed Him to tell me that over and over. I pray you have a blessed week! Thank you for being a blessing to our family!





Sunday, October 11, 2009

Happy 6 year Anniversary!!

Kevin and I celebrated our 6 yr. wedding anniversary in Orlando. We went away for two nights while Grandma and Grandpa watched Mason. (Actually it wasn't quite 48 hrs. but it felt like forever) We had a great time hanging out and sleeping and sleeping and sleeping :). I came back very well rested. I have an amazing husband and thank God for putting him in my life. October 10th still and will always go down as the 2nd best day of my life. (The first, of course is coming to know Christ) Here's to 50 more years baby! I won't say how old I'll be at that point. Pretty old!!! :)

Thursday, October 8, 2009

Eye Appointment with Mason

Mason's appointment went great! Of course, he was good. Never cried a peep when they put the drops in his eyes. His eyes look great. He does not need glasses. Anything funny that his eyes are doing is due to his brain. There is nothing wrong with the eyes themselves. This was a huge answer to prayer. We will go back in a few months to make sure everything still looks good.
I have to say with all of these appointments God has truly blessed us with a little boy that goes with the flow. I stand in amazement that he never cries, Lays nice and still and is usually smiling. That to me is a miracle all in itself. It would be very stressful if he cried all the time. I'm praising the Lord for that. We'll update you again next week when we go see the neurologist. Have a great week!

Mason Update

We got into Shriners!!! This is a huge answer to prayer. They are not taking babies but thank you to Tyler he was able to get him in. Shriners will take care of all Mason's braces / surgeries lots of medical needs. Once he's in he's in. He will be sponsored until he is 18. We go October 21st for an overall orthopedic evaluation.
Today we have our eye appointment at 2:00. We will let you know how that is going. We need you to please pray that Mason gains weight. He's lost a pound. He went from being in the 50th percentile in weight to the 5th percentile. Not great!! We are going to be trying some different things the next two weeks to get his weight back up. I don't want to have to stop breastfeeding so I'm praying that some different changes will work. Thank you for keeping us in your prayers. Have a blessed week. Love, Wendy