Tuesday, February 23, 2010

We're Home!!!

Surgery went great today. They put the tube in as deep as it can go and we're only going to feed Mason through the tube until Saturday. Saturday we will add in oral feeds as well as tube feeds. They told us at 5:00 if we felt comfortable with everything we could go home. We had everything packed and we were out the door in an hour. Now we're praying that this tube can stay in for 2 - 3wks until we can do the button tube.

We're so grateful to be home. We are ready for life to get back to normal. Kevin is going to put some hospital pictures up from this past month. Thank you for your continued prayers and words of encouragement. We praise God for all the things we've learned and the weight that we KNOW Mason will gain!!Love you all, Wendy

Friday, February 19, 2010

Remaining in Hospital

Funny how your day can literally change hour by hour. We went to Radiology to check Mason's tube. It made its way out again. Mason began throwing up when we started to feed him. They are going to keep us in the hospital over the weekend and do the procedure again on Monday. I'm sure you're wondering why this is not working. Because Mason is an infant the first 6 wks they have to use a Jtube that is really light and small. When Mason throws up he keeps throwing the tube up little by little. In 3 wks. they switch to a button tube which is much heavier and thicker. We're praying that we won't have as much trouble with this tube. The next few wks. will be a bit annoying but after that we're hoping things will go smoother. We're a little disappointed but thankful it happened now and it wasn't an ER incident. We'll update with pics another day. Just means you'll have more to view when we arrive at home. Love you all, Wendy We're in rm 871 if you're down in St. Pete this weekend.

Mason Update

Dr. W just came in and decided that we will be going home today!!! Yeah!!! We've had some ups and down but we're ready to sleep in our own beds. First, let's start with the best news of all. My precious son Mason C White (aka MC White) slept through the night for the first time!!!!!! Hallelujah!!! I woke up this am and looked at the clock and thought I was dreaming. Yeah MA MA so proud of you buddy! The not so great news is that when he woke up he threw up. Here's what we are figuring out. Yesterday we did an xray on Mason's stomach to see if the tube is moving when he throws up. Indeed it has moved quite a bit since Tuesday :(. Sooooo before we leave today we're going to have radiology put the tube back in place. What this means is we will prob be back here soon. Until they can replace the tubing with the button ( in 5 wks) we will continue to have this problem. Right now he only throws up mucus. (unless it was an oral feed) When we begin to see him throw up milk, we have to come back. I'm grateful that we are beginning to understand his body more and we are getting answers. Even though it's not always a great solution at least we have one. So we'll go home and live life until the problem comes up again. Tomorrow we'll post some pics from the past few weeks. Thank you for keeping Mason in your prayers. We continue to pray and believe that he will continue to grow and have an abundant life.

Tuesday, February 16, 2010

Mason's Surgery

Surgery went great today. Mason went in at 12:30 and finished around 1:15. The tube was placed lower in his intestines and we're praying that we will see great results. He's had a good afternoon and evening. He's been able to receive feeds all day and done pretty good with keeping them down. Tomorrow will be a big testing day. We will be moving him around more and treating him like normal. We're praying that his food stays down and we can be sent home in the next couple of days. Thank you for all the amazing phone calls and texts. You guys keep us going with a smile on our face. Thank you to Tyler (Zilla), Emilee, P.K, Laura and Miss Donna for hanging out during surgery today. We actually had a blast waiting for Mason's surgery. I have to tell you this story b/c I know you're prob. feeling a bit sorry for us that we're still in the hospital. Really, we're having fun. :) In the pre op room they have these stools on wheels (very comfortable). Of course we were the only ones in this huge room and you can only wait for so long before you find ways to create trouble. I discovered that these stools roll unbelievably well. I layed on the stool stomach down a took off like an Olympic Gold Medalist. P.K and I got quite good at it. So I felt that our doctor needed to experience the fun we were having. When he came in, I showed off my talents to him. He had to leave the room b/c he was laughing. It's all about making the doc's smile and have fun. We told the nurses the next time they're bored they could have a serious competition going.

Again, thank you for keeping up with our family. We love you all and feel so blessed to have amazing friends and family. We will keep you updated on Mason throughout the week. God Bless, Wendy

Monday, February 15, 2010

Update on Mason

I was hoping that this message would be coming to you from our home loaded with great pics from the last two weeks. We do have tons of pics to post. As soon as we're back home, we will be sure to put them on the blog. This past week has been a whirlwind. We were sent home Wednesday afternoon. Before leaving the hospital Mason threw up. We didn't think much of it but he continued to throw up Wednesday and Thursday. Our doctor sent us back to the hospital Thursday evening to get a test done to evaluate where his J tube was placed. They discovered that the tube needed to be put further down in his intestines. We went back to our GI doctor on Friday and asked if we could be admitted Monday and remain home for the weekend. We wanted to give Mason a chance to sleep in his own bed and get back to a schedule. She said as long as we made sure he was hydrated then she was fine with it. We were supposed to have surgery this am but there was a miscommunication between the doc office and hospital. Tomorrow morning they will be fixing the Jtube. Since Friday it has continued to come out so we're very thankful we are here. They will keep us here for a couple of days to monitor his feedings. He does fine if we don't move him but that is not reality. We continue to pray that God will heal his body and that his GJ tube will work. Dr. Condino did say that she thinks he may end up needing the fundoplication surgery. We are putting it off as long as possible. Thank you for your continued prayers. We praise God that we're at a wonderful hospital with great nurses and doctors. We've been able to get to know many of the staff members. They quickly become your second family. We will continue to update you on any new information we receive. Love you all, Wendy

Tuesday, February 9, 2010

Mason's Surgery

Mason did a great job yesterday. Surgery was around noon and only took 20 min. He was brought back to the room around 2 and looked great. He was on heavy drugs all day yesterday and slept alot. Today they started his tube around 10 and he's been doing great. He is still able to receive oral feedings at a small dosage. He has had a great day and we continue to pray that this will be the answer. Looks like they may send us home tomorrow. Yeah!!! We are ready to be in our own beds. Thank you for your prayers yesterday. God gave us such a peace during Mason's procedure.

The highlight of our hospital stay was on Sat. Morning. We were chilling out in our room when in walked my sister Deborah. She drove from N.C. on Friday to see Mason. I screamed so loud and couldn't believe she was here. That night she and I went back to our house to get laundry done and get the house ready. We had wonderful sister bonding time. Thank you Aunt Debo for coming to see me. We love you soooo much!

Have a blessed day. Next time we update we will be home. :) Love you all

Friday, February 5, 2010

Mason's Surgery

Mason will have surgery Monday morning to put in a GJ Tube (feeding tube). This was the least invasive surgery of the three they were discussing. It should take about 30 min. to do the procedure. They will be putting him under and the recovery is only a day. We continue to pray that this will help solve many of his problems. As we were discussing with the doctors this week, we would like to try this before considering the fundoplication surgery . That surgery has many negatives to it and would need to be repeated. Kevin and I are praying that the GJ tube will be the answer and we can go home this week. The problem they discovered with his diaphragm we are putting on the back burner. We will continue to follow up with pulmonology but we all decided that it was not a high priority. The surgeons would like for him to gain weight before considering that surgery.

Mason is feeling much better. Fever has been gone for a couple of days and his cough has subsided quite a bit. They have been giving him breathing treatments several times a day and they have made a big difference. We continue to praise God for his protection while we've been here. We have had wonderful doctors and nurses that have been working with us. We met a little girl yesterday that has a GJ Tube. She has been here for 65 days!! Her mom said her G tube has been a blessing. I told her mom I can't imagine how they have done this for so long. All you have to do is walk down the hall of this hospital and you realize quickly your situation is not bad. We praise the Lord that we have been able to solve Mason's problem so quickly. I know I sound like a broken record but thank you thank you for all your prayers. God has given us an amazing peace. I'm sure Monday morning will be a little tough when they take him away but I know the results will be great. I was joking around w/ the doc about this surgery. I was saying that if Mason's was getting fed throughout the night that he should start sleeping through the night, Right??? He of course laughed and said he couldn't guarantee that. I told him if he could he would have a line of mothers outside his office door everyday. :) Wishful thinking. :) We will continue to keep you updated. Love you all, Kevin, Wendy and Mason

Monday, February 1, 2010

Medical updates on Mason

We have had an interesting weekend at All Children's. Friday they placed the PH probe in Mason's body. It remained there until Sat. morning. This tested the acid that was going through his stomach. He had a VERY difficult time with the tubes up his nose. He was unable to sleep for any length of time over the weekend. This morning we asked the doctor to please remove the feeding tube. Since having it in, Mason developed a horrible cough and conjestion. This morning he started running a fever of 102.5. This has continued throughout the day even with Tylenol. They have now contacted Neurosurgery to do some scans to make sure there is not shunt malfunction.


Originally, we came into the hospital for all of the GI issues. When they did the esophogram on Mason, they discoverd that his diaphram is uneven. The right side is elevated more than the left side. This can be very serious and require an extensive surgery. We have done an ultrasound, Fluroscopy and CT Scan to look at the diaphram. The pulmonologist that we are working with is great and cautious. He is running every test before deciding on surgery. Tomorrow, we should have results back from CT Scan. The problem is called a diaphragmatic hernia. The surgery would push the diaphram down making it even with the left side. Please be in prayer about this procedure. Anytime surgery is discussed it is scary. We continue to pray for wisdom and guidance.

As far as the GI issues go, we're still going around in a circle. Friday we were told the GJ tube was where they were leaning. (feeding tube) Today we are getting another story. The good news is the fundoplication seems to be ruled out at this time. Our doctor is not a big fan of the surgery. It has alot of negative side effects and may not be a solution for the problem. Our biggest question is what is the cause? They are still unable to give us an answer. Until they do, We are not letting them open Mason up for any surgery. Please continue to pray for us in this situation. It gets a bit frustrating b/c we still feel we're at square one. The PH probe came back positive for acid. The doc seems unsure of a solution.

We feel so blessed to be at the new hospital. It is great and we know Mason is in good hands. Please pray that his fever goes down and we can get some answers. We would love some sleep as well :). We have had amazing support. Thank you for your texts, phone calls and visits. They mean the world to us. Mason has an amazing collection of stuffed animals. His crib is full of precious treasures people have brought. Thank you to all my girls who have come to cheer me up and get me out of the hospital. Please pray for Kevin as he works during the day and comes to stay with us at night. He has alot on his shoulders. What a precious husband and daddy. You are our hero!!! We'll keep you updated as we continue to find out new information. Love you all, Wendy