Friday, November 19, 2010

Little "P's" 30th bday party

As you can see Mason was not as excited about his outfit like we were. We had fun at Priscilla's 80's themed 30th bday. Our little man would have fit right in in the 80's.



Happy Trunk or Treat

Mason is doing just great. This year he was dressed as a hopsital patient and Kevin was a doctor and I was his nurse. We had a blast at trunk or treat!! Too bad everyone at church thought something had happened to him. (Even though we were there that morning and he looked great. ) We laughed and told them he was perfectly fine. :)

Monday, October 11, 2010

Mason's Miracles

Hey, I'm sooooo sorry it has taken this long to update my blog. The past two months have been a blur. I started my full time job with the Florida Virtual School. (love it) I've been going to several trainings in Orlando. We found a house and closed in 21 days and have been moving this past week. Needless to say between the house, working and Mason my plate has been overflowing. I appreciate all the sweet comments I've been getting curious about Mason. That means so much to us and I promise I'm back and will update frequently. :) Mason is doing great. So many amazing miracles God has given us. The one that we are most excited about is he now weighs 20 pounds. Thank you Lord. I didn't think we would break in to the two's but he did it. He's doing better with keeping solid foods down. He takes an ounce or two by bottle. The majority of his feedings are with his tube but we're making great progress. The other exciting thing is he sat by himself for 30 seconds at therapy. Yipeeeeee!!!! Of course we were crying, taking pics and he just looked at the three of us like we were crazy and he didn't understand why we were being so dramatic. I couldn't believe it. This is the one thing that I have prayed that God would allow him to do. Being able to sit and play is my dream and so I'm waiting patiently for that day but until then I'm content with 30 seconds. He is starting to say DaDa and MaMa a little. He tries so hard to talk and moves his mouth. He is growing up and we couldn't be more proud of his accomplishments.
Those of you who do not live around us, we moved back to Pinellas County. This has made a huge impact on our lives. It used to take us an hour to get to therapy and an hour back. Now it takes 8 min. Church only takes 15 and our pediatrician is 5 min. away. I was explaining this to a friend. It blows me away when God makes a path so straight and clear that you know no one could have done that except HIM. I don't know why that catches me off guard. God is constantly blessing our lives but I love when I look at a situation and know for a fact only God could have done that 100%. We love our home and we are forever grateful to be closer to our friends. I know there is more to tell you. I don't want to put it all on one blog. I promise to continue to update. Until then we will celebrate God's amazing Miracles and thank him for his goodness.
Love you all, Wendy

Look at me I'm sitting for the first time. Thank you Lord for Miracles!!!


Monday, August 16, 2010

Great Updates on Mason

We have been enjoying the last few weeks back at home and getting life back to normal. Mason is doing Awesome!!! The apnea monitor has not gone off once since we've been home. We are confident that we will be able to return it soon. He has started eating small amounts of pureed food and drinking an ounce or two from the bottle. He is still getting the majority of his feeds from his Gtube. We received great news the week we came home. Mason's wheelchair was in and ready to be delivered. I have posted pics of his new ride a couple posts down. We love it. It has changed his world. He is finally able to see life from a sitting position.


We went to see the neurologist today. Mason has gained back all the weight he lost and continues to get taller. She did diagnose him with cerebral palsy. We have known that this was probably going to be added to his list and we're fine with it. Doesn't really change anything just gives his tone an official name. He has been able to go back to therapy and is doing great. We're so grateful for God's protection over his life. I continue to stand in awe at the blessings He gives our family. This past Sat. Kevin and I took Mason for his first carousel ride. I stood like a proud mama and took about 50 pics. It was one of the first "normal" things we've been able to do with him. As I watched he and Kevin smile and laugh, I thanked God for my life. Even with the ups and downs I wouldn't change it. It's through all those times I see the hand of God in a personal way. I know if my life were different I wouldn't appreciate the small things that I so often forget. So I stand humbled that I get to experience life next to Him. When we see life through God's fingerprint, we realize just how big it is. Thank you for riding this journey with us. Enjoy the many pictures below.





Warning!!! The pics you are about to view are a bit disturbing!!

Kevin entered a dodgeball tournament w/ some of his buddies. The tournament was for charity and they had a great time getting into character. (Maybe a little too much fun:) ) They took this very seriously and practiced the weekend before. Sad to say they got out in the first round however there costumes made the newspaper. Mason is a lucky kid to have a dad that is EXTREMELY confident in who he is as a man. :)





Mason's wheelchair!!! Yeah, so excited!!!

We received the best surprise when we came home from the hospital. Mason's wheelchair was delivered. We love it!!!! It's a stoller wheelchair. The base is like a stroller and the seating is a wheelchair. It turns on a dime. We are so grateful for this amazing gift. He looks like a big boy when he rides in it. Thank you Lord for your overflowing blessings.





Thank you to all our hospital visitors!

Mason in music therapy with Grandma and Aunt LeLe




Aunt Nell flew down to see me!!!! We had so much fun!!














Ashley took me out for my bday for a girls day. So much fun , massages, pedicures shopping a girls perfect day!! Love you Ash

























































Mason and Baby Cole. The 1st of Many pics to come








































Sean spent the summer w/ my parents and loved on Mason. He was so good to him and we miss you already Sean.





























































Happy Birthday to me! We had a fun day hanging in the hospital.













































Sunday, July 25, 2010

Sleep Study Details

Sleep study went well and showed us several things. First, he has central apnea. This means that his brain forgets to tell his body to breathe when he is in REM sleep. It also means that he has very shallow breathing. However, the majority of the time he does great. They are sending us home on an Apnea Monitor and possibly Oxygen. They will make the decision about O2 tomorrow. Tomorrow morning he will be going under anesthesia again to do an MRI on his brain and brain stem. They are looking for something in his brain stem that could be causing this. (It has a name I just can't remember what it is :) ) If he has this, it would cause these episodes to increase and will eventually need neurosurgery to take it out. Also this could explain the severe reflux etc. We will remain here until Tues and then hopefully go home. I will be in Orlando all week training and driving back and forth. I will update the blog as soon as I can. Thank you for your continued prayers and words of encouragement. Have a blessed week!



This looks like a comfortable way to sleep?????? What a trooper. :)