I'm going to stay with my previous analogy. To me, the greatest part of a rollercoaster is you're able to scream at the top of your lungs and everyone is ok with that. Today I would have given anything to be on a fabulous rollercoaster. This morning Mason went for his procedure and it went great. We are still waiting for results from the biopsy. Dr. W noticed that the esophagus was still inflamed and the blood is coming from that area. He has seen improvements since we have begun the medicines but still not enough. His PH probe will be taken out tomorrow afternoon and based on those results as well as the biopsy we will make several decisions. First, change his meds and see if that would work. Second,put the fundoplication surgery back on the table. :( Our docs have been so great to try and avoid this surgery. They really are searching every avenue before cutting him open. If you could continue to pray for wisdom for the docs and Kevin and I. We want to make a wise decision that will improve his quality of life. Mason has gained great weight. We were told that he is now in the 25th percentile. Woo Hoo Mason!!!! The nurses have been amazed at how big he looks.
Now for the screaming rollercoaster part. At 1:30 today I was supposed to receive my Genetic testing results. They rolled Mason in 10 min. before I had to leave. We had our snuggle and prayer time before Grandma took over. I drove my 40 min. to Tampa General to have them tell me that the results were not in and it would be another two weeks. (Now you are seeing where the screaming would have been nice) Not hearing the results was fine but leaving Mason for nothing about put me over the edge. Instead of a rollercoaster, my car, Kevin,Mom,Aunt LiLi, Laura and Ashley had the great privilege of hearing my screams and cries. The blessing in all of this was the emotions I had pinned up inside I was able to get out. Now my mind is clear and ready for a great interview tomorrow. :)
Thank you for continuing to pray for our family. Your words and prayers are incredible. During Mason's procedure, I was waiting by myself. Which is unusual but perfect for today. I've been reading the book "I will Carry You" by Angie Smith. Fabulous book!!!! At the end of the chapter, she quoted 2 Corinthians 4:16 - 18. I have read and memorized these verses hundreds of times. (Growing up in Christian School/ Awana) Today I saw them in a whole new light.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, For what is seen is temporary, but what is unseen is eternal. "
Thank you Lord for giving us amazing hope and joy even when life is a rollercoaster.
Git R' Done
13 years ago
3 comments:
Been praying!! We love you. In spirit, I will hold the bag when you need to puke, or scream with you, or ride the ride again, or just go to the bumper cars :-)
hoping mason's test turn out good..good luck with the interview..
Wendy, Kevin and Mason,
I just got caught up on the blog entries and am in tears... but not tears of hopelessness and despair, which I allowed the enemy to creep in & carry me into earlier today about Ella and her future, but tears of joy and re-assurance about Who Mason and Ella's Creator is and what His plan is... our situation here on Earth is temporary... and we can look forward with joy and anticipation when our precious children WILL have new and perfect bodies and minds and they will be praising their maker's name with their mommies and daddies right there, doing the same! Wendy, I love you, precious friend and am in awe how the Lord brought us together to walk this journey together. You are such an incredible comfort to me and always have something to lift me up when I am at my low. I only hope I sometimes can offer you the same encouragement and redirection to look to Jesus when you are feeling discouraged! See you Saturday!!!
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