Git R' Done
13 years ago
Thursday, September 10, 2009
Genetic testing results
This morning I was taking Mason to Pt. As I was waiting, I received a call from our pediatrican. Mason tested positive for Xlink. I think I knew this was coming and as much as you try and prepare yourself it is still a shock. On one hands our hearts are broken and the other were so grateful that God has chosen us to walk this journey. We don't have all the answers and probably won't for awhile. The one positive side is that on the 21st we can ask all the questions we have. You can look it up it is Xlink Hydrocephelus. As you will see, it has alot of tuff things to swallow. This also effects us if we want to have more children. At this point is not a possibility. Thank you for your prayers. We're going to need them as we process all of this and find ways that we can best help Mason. My only prayer to the Lord is that Mason will know HIM and understand God's word. thank you again. Love, Wendy
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19 comments:
Dear Wendy,
I have been following your story through my daugher Amy Hannan. You have been in my prayers and thoughts since Mason's birth. You are on an incredible journey with Mason, God will guide you all through this, you are an amazing family. Children are our blessings, enjoy every moment you have with Mason.
Love and heartfelt prayers to all of you.
Linda Hannan
You are constantly in our prayers!- Adam & Lindsey Bricker
Wendy and Kevin...I totally do not know if you remember us. We used to attend Calvary with you guys. Anyhow I am praying for you guys. God is so good and He has such a plan. I know it is so hard to see when things are just not going the way it was planned. But He has a bigger and better plan than even we know!!!! I am on my knees for you guys!!! I am excited to see the miracles God has in store for you guys and your little man!!
Jennifer and Jack Hughes
Praying for you and your sweet family!
Dear sweet friends,
My heart aches for you tonight. Your love for that precious boy just seeps through your words on my screen. I have to share with you something the Lord seared into my life and my heart this week. I believe that this is for you, as well...on this day. At first it may sound trite, but the deeper meaning is profound. I read that when a big storm comes, a turkey and an eagle react very differently. A turkey runs and hides in a barn or under a bridge or bush, hoping the storm doesn't come its way. An eagle, on the other hand, goes flying toward the storm and right into its horrific and powerful winds. The eagle knows that if he faces the storm full on, he can utilize its dangerous winds to propel him higher than he could ever fly on a normal day. He knows that facing the storm will ultimately take him high above the dangerous winds where he can look down and still see the storm, all the while soaring in the safety of the calm stratosphere. It is there that he gains the perspective that we all desire in our own storms. Maybe he sees the next storm differently. Like the eagle, I want to have the faith to embrace my storms, knowing that in them, God desires to propel me into the calm stratosphere of his Perfect Peace. I am not there yet. But I know that the view from that stratosphere must be phenomenal. That is my prayer for you, Wendy and Kevin. May you know...without a doubt....that peace is coming. You absolutely WILL see the power of God in Mason's life and story. He doesn't write them any other way! Praise God that He knows the "greater glory" that this storm will bring. O dear friends, may you walk this road gaining every ounce of strength from our Mighty God who promises strength to the weary; knowing that "those who hope in the Lord, will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not faint" (Is. 40:31)
As you trust in his omniscient plan, I will be praying that God gives you wings like an eagle. May He renew your strength each day, and may He get ALL glory as you soar in his peace.
We love you,
Kelly, Matt and boys
love you guys! -a
Your son is beautiful. I have quietly been following you and your story. I remember the day we got a confirmed diagnosis. It helps to connect with other parents greatly! Thinking of you and love watching your son grow!
praying for you and love you!
Wendy, Kevin & Mason,
Ella Joy cannot wait to meet you Mason! The doctors told us 2 months ago, when Ella was 6 weeks old, that Ella would most likely be blind, deaf and have no real ability to communicate or express emotions... But they did not know who Ella's DADDY is,and Mason's too...He is the Creator, the Almighty, the Author and Finisher, the Shepherd, the Potter, the Victorious ONE, the One who makes no mistakes. Wendy & Kevin, Paul and I's prayer for you is that you press into the Lord...lay all your fears, anxieties, suffocating thoughts, questions, scary visions of the future...lay them out before the Lord. Cry out to Him to show Himself to you. To give you His healing grace. To hold you tight in His grasp so that you won't feel like you are free falling, but instead that you are firmly grounded in His sovereign plan. Nothing about this is easy and it seems as if there is no silver lining or light at the end of the tunnel...but I promise you that there is so much joy to be had, as we are witnesses to that every day with our Ella. He is the God of Peace and Hope and His greatest desire is to draw His children closer to him... So curl up under His great wing. Let Him be your refuge. Listen for His whisper to you that He IS in control. We look forward to doing this life with you..Ella and Mason, side by side! Much Love, Anna, Paul Hendrix & Ella Loughridge
All my troubles and problems pale in comparison. I pray everyday for Mason and you and Keven. You are so strong and that is because of the faith and values your parents enstilled in you when you were young. Give them a hug and tell them thank you for that gift. It is more valuable now than ever. You are loved. Sharon
I have been following your story after finding it on another blog. I am sorry for the diagnosis you received, but it's always good to know the answer. Now you can learn the best ways to deal with it, and find support from other parents.
Your son is absolutely adorable, and I can't wait to read more about how he's doing. :)
We have been praying for you and will continue to do so. Mason is a lucky little boy to have such wonderful parents. We know this is a very difficult time for you. Please let us know if there is anything we can do. We love you.
With love,
Jenny, Sean, and Sammy
Praying for your family! We love you guys and are inspired by your faith in the Lord!
Mason will have a full and rich life. He has been so blessed by God to have you both as his parents. You and your family will continue to be in our prayers, and we look forward to hearing about the many milestones Mason will achieve in the months and years to come. Our God is an amazing and awesome God, and we know His amazing awesomeness will be revealed in so many wonderful ways in your beautiful little boy.
Much love,
Kathy and Ron Bagwell (Jenny's parents)
Dear Wendy & Kevin,
My heart breaks for yours with this news. I have been praying and will continue to pray fervently for you both and little Mason. I pray that God will work miracles in that precious boy's life that will astound all the doctors and cause onlookers' jaws to drop to the floor in awe of what God can do. I pray that he will not only know Jesus for himself, but that he will be a living testimony of God's glory that will cause many people to come to know Christ as a result. God has got big plans for that child, and it is no coincidence at all that He chose you and Kevin for this task. The faith you have already displayed through all of this has been a tremendous encouragement and inspiration to me personally as I am sure many many others as well.
Love you both and I will keep praying!
Jenifer Smith
Hi Kevin & Wendy,
Jason and I have been checking your blog and just read the news about Mason's test results. This does break our hearts to hear that. You are constantly in our thoughts and prayers. You both are one of the most amazing people we know. Your faith and strength through this is incredible, and God could not have given Mason better parents than you! Please let us know if there is anything we can do for you. We have been anxious to meet Mason and do want to see you soon, but we know you have been busy and dealing with so much. We will give you a call soon, or feel free to call us if you have a chance. We love all of you!!
Jason & Courtney
Wendy and Kevin,
We will continue to pray for you and that beautiful son of yours. You are loved.
Holding His Hand (Psalm 37:24),
Susan
That Easter basket story is so beautiful and I truly believe that that will be the story of Mason. No matter what, he is going to do amazing things, they just might come about at a different time or in a different way. All of your lives are fuller for having each other just the way you are.
Love and miss you guys!
Adrienne
P.S. Did I mention how darn handsome that little boy is?!?! =)
Kevin and Wendy, I have been out of town so I just read your latest entry about Mason's test results--certainly not what you were hoping to hear. I know when Keri and John found out that Katie had down syndrome, there is almost a grief process that happens for "what might have been". I think I grieved more than they did though, and I can't even tell you how much that little girl has blessed our lives. Mason is on this earth for a very special mission, and God sent him to the parents that He wanted Mason to have to help him on that mission! He is adorable, and I would love to meet him in person someday! Please let me know if there is every ANYTHING I can do to help out--even to babysit--I LOVE babies, as you probably know! (Of course, I am sure I would have to get past Grandma Benitez!) You will be lifted up in our prayers daily!
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