Now for Mason, :) We met with Dr. Rodriguez on Thursday. Mason is missing his corpus callosum in his brain. That is the middle part of your brain that connects the two hemispheres. His ventricles are enlarged and misshapen. What does this mean? Means he will have developmental delays. How delayed? Only time will tell. Dr. R said he has seen brains like this and the child does pretty well. He has also seen this and they really struggle. We will be continuing to stimulate him any way we can. He did say that he wouldn't classify him as severe because his appearance isn't as severe.
From here we have two more appointments, October 8th we go to the optometrist to take a look at his eyes. He's having a hard time tracking images and light. October 15 we will go see the Neurologist. She will be doing an EKG on his brain to make sure he's not having seizures. Then we will be able to discuss with her his development.
Believe it or not we left the appointment feeling good and optimistic. I was really struggling with the Lord on Wednesday. I had so many questions that I may never get answers as to "why". After having a fantastic pitty party for myself, I felt God wrap his loving arms around me. I begged him for hope. I needed something to hold on to to keep me going. I felt myself starting to spiral down a black hole and I didn't want to be there. I asked God to carry me because I didn't have the energy to walk at those moments. Before we went to the appt. On Thurs morning, I was listening to the Joy FM. My favorite song by Sidewalk Prophets came on. (This is the song I sing to Mason everyday). I was feeding Mason and listening again to the words that I've memorized. I felt God say to me this time these words are for you. As I listened tears ran down my face because I knew that even in the times when we are so discouraged and frustrated with life God is there. He's just waiting for us to ask him for help. If you are not familiar with the song it says "Be strong in the Lord and never give up hope, You're going to do great things I already know. God's got his hand on you so don't live life in Fear. Forgive and Forget but don't forget why you're here .Take your time to pray and thank God for each day. That was the hope that I needed from him on Thursday. Even though some of the news wasn't the best Thursday we left knowing that God is going to continue to do great things!
We'll be posting pictures of our trip to Tallahassee later this week. Have a blessed week, Wendy
8 comments:
This was my devotion for today. I thought of you and wanted to pass it on.
IPeter 4:12-13
"Dear friends, do not be surprised at the painful trial you are suffering, as though something strange were happening to you. But rejoice that you participate in the sufferings of Christ, so that you may be overjoyed when His Glory is revealed." (NIV)
We love you guys..Diane & Jim
Hey wendy,
Thanks for the updates. We'll keep praying. IN the meantime, I just want you to know how much it means to read your words. It's encouraging... your faith and transparency with all the news you're having to comprehend (both the good and the bad).
It's all for His glory!!
Hi Wendy,
We are praying for you and your family. I know that God has great plans for Mason. As a word of encouragement, I have a friend here who has 5 children. Her oldest is also missising his corpus colosum (spelling? :) ) He is 13 now and doing well in school. He is in a regular classroom and doing very good. Yes, he has problems but you would never know it by looking at him! It has been a struggle for this family also yet they know (as you do) that God walks by your side always!
Hey Wendy,
Thank you for your updates. Know that you and your family are covered with prayers from people all over! As an encouragement, I have a friend who has 5 children. Her oldest is also missing his corpus collosum (spelling?). He is currently 13 and doing well in school. He struggles with many things but looking at him you would never know it! There is a whole community out there of people with this condition if you decide to join a group. Love to you and your family and I know you know that God is walking by your side daily. You will have such blessings from Mason!
Hey Wendy! It's been years!
Allyson told me about your blog, I read your posts about Mason and he is in my prayers. He is absolutely precious.
heyyy!!! =] I was just thinking about you today and decided to check out Kev's myspace to see how things are going. I ended up here when I read that you now have a baby boy!!!! =] That is such a blessing and he looks like such a happy child!!! I read that you were having some challenges with his medical condition, and if anyone can get through this I know you guys can. You are the most loving person I have ever met! To this day, I still think about the impact you made on me when I was a fourth and fifth grader at Maximo Elementary. God has given you a very special gift, and I know from the things that you write you are ready to take on this journey. You have a beautiful family!!
I also saw something about Liberty University in your blog. Did you attend Liberty?!?! Recently I have been introduced to this school by my small group leader at Indian Rocks Baptist, and I have heard nothing but wonderful things about it! I am feeling called to a christian college more and more everyday!! I really hope to visit the campus on one of their upcoming College for a Weekend events!! :)
It is so good to see that you are doing wel!!I love you so much!! Little Mason, as well as you and Kev will be in my prayers!!
Dear Wendy and Kevin,
Bob and I just caught up on your blogs tonight and we are both so amazed and inspired by your faith in your Savior....you have touched our hearts even in your deepest pain. We will continue to pray for you both and for precious, precious Mason! Love the pictures and really, really want to meet him in person sometime soon!
We love you and thank God for the blessing you are to all you come in contact with!
xo
Bob and Beth Dare
Hi Wendy,
Just wanted to let you know that your honesty and your "realness" before God are such encouragements to me. I pray for God to continue to heal your sweet boy and allow those connections to grow, knowing that he, indeed, will fulfill the plan God has for him. You are a light, Wendy, and although I know you never, ever would have wanted this, He is using you and strengthening us as He is perfect in your weakness.
Love to all three of you!
Julie (Bucholtz) Starcher
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